Patient-centered Dementia Care: Understanding Patient and Caregiver Experiences

MODULE INFORMATION

Duration: 60 minutes
Format: Video Stream & pdfs

Continuing Education Credits Available for the Following Disciplines:

Medicine
Nursing
Occupational Therapy (UIC ENGAGE-IL is an AOTA Approved Provider, #10173).

The assignment of AOTA CEUs does not imply endorsement of specific module content, products, or clinical procedures by AOTA

Pharmacy
Social Work

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Overview

In 2017, over 5 million Americans aged 65 and older had dementia, a progressive and irreversible condition leading to loss of functions such as thinking, memory and reasoning, at times severe enough to interfere with daily life. By 2050, the number of persons living with Dementia is expected to triple. With an increase in the aging population, there is a critical need to understand dementia and identify appropriate assessment and management strategies to address the needs of persons with dementia and support their caregivers and families. Take our learning module that integrates important clinical content following the journey of a person with dementia and family caregiver. The patient and caregiver in this module travel through the stages of dementia with the clinician team using a dementia positive approach to care.

Learning Objectives

Upon completion of this module, learners will be able to:

  1. Discuss dementia pathophysiology, epidemiology, risk factors, and prognosis
  2. Discuss the different types and stages of dementia and review the progression of symptoms
  3. Utilize appropriate assessment tools for diagnosing dementia
  4. Discuss the pharmacologic and nonpharmacologic treatment of dementia
  5. Identify the resource needs of patients and caregivers, including safety issues and caregiver burden and burnout
  6. Evaluate the need for hospice/palliative care referral

Author:

L. Amanda Perry, MD
University of Illinois at Chicago, Chicago, IL
Department of Family Medicine
Assistant Professor of Clinical Family Medicine

Valerie Gruss PhD, APN, CNP-BC
Clinical Assistant Professor
College of Nursing
Director, ENGAGE-IL
University of Illinois at Chicago

Memoona Hasnain MD, MHPE, PhD
Professor and Associate Department Head, Faculty Development & Research
College of Medicine,
Department of Family Medicine
Co-Director, ENGAGE-IL
University of Illinois at Chicago

Laura Meyer-Junco, PharmD, BCPS, CPE
Clinical Assistant Professor and Clinical Pharmacist
University of Illinois at Chicago College of Pharmacy, Rockford campus

Michael Koronkowski, PharmD, CGP
Clinical Assistant Professor Department of Pharmacy Practice
College of Pharmacy
Co-Investigator, ENGAGE-IL University of Illinois at Chicago

Author Bio:

Dr. L. Amanda Perry is an Assistant Professor of Clinical Family Medicine at University of Illinois at Chicago. She earned her medical degree from Rush Medical College in Chicago and completed a Family Medicine Residency and Geriatric Fellowship at University of Illinois at Chicago. Dr. Perry is board certified in Family Medicine and Geriatric Medicine. She is the former Medical Director of the Physician Home Visit Program at UIC. She has expertise in full-spectrum family medicine from prenatal care to neonates to geriatrics. Dr. Perry has a special interest in patient-centered care for vulnerable and underserved populations, including Lesbian, Bisexual, Gay and Transgender persons.  

 

Valerie Gruss, PhD, APN, CNP-BC, is an Associate Professor in the UIC College of Nursing. She is a board-certified Nurse Practitioner with a broad range of clinical expertise and research experience working in primary care and with multidisciplinary teams in a variety of settings. Dr. Gruss’ position at UIC blends her roles as researcher, clinician and educator.

In 2015, Dr. Gruss was awarded a $2.5 million three year grant through the HRSA Geriatrics Workforce Enhancement Program (GWEP), to create an interprofessional education program for improving the care of older adults. Dr. Gruss clinical role is as Lead Clinical Consultant on a Federal Demonstration Project for the State of Illinois, “Money Follows the Person”, which transitions eligible seniors out of nursing homes and back to the community. As an educator, Dr. Gruss teaches primary care and geriatrics in the UIC College of Nursing graduate program. In pursuit of changing current nursing education to a more interdisciplinary model, she is very involved in interprofessional education and serves on the Vice Chancellor’s IPE Steering Committee.

 

Dr. Memoona Hasnain is a tenured Professor and Associate Department Head, Faculty Development & Research in the Department of Family Medicine, College of Medicine, University of Illinois at Chicago (UIC). The primary focus of Dr. Hasnain’s work is at the intersection of medicine and public health, with an emphasis on interprofessional education, service and scholarship. Dr. Hasnain is the principal architect of several educational innovations, including UIC College of Medicine’s longitudinal “Patient-centered Medicine Scholars Program”, which has special emphasis on vulnerable populations: those affected by HIV-AIDS, domestic violence and homelessness, older adults (geriatrics) and immigrants & refugees. Dr. Hasnain is Co-Director of “ENGAGE-IL” a Geriatrics Workforce Enhancement Program grant funded by HRSA. She is the lead editor of a book on South Asian Health and a reviewer for federal grants and several scientific journals.  She is current President of the South Asian Public Health Association; Chair Scholarship Workgroup for UIC’s Interprofessional Steering Committee; past Chair of the Group on Faculty Development for the Society of Teachers of Family Medicine; founding Faculty Advisor for the UIC COM Student Wellness Committee and Co-Chair for the UIC COM Gold Humanism Honor Society. Dr. Hasnain has received numerous accolades for her research and teaching, including the prestigious Macy Faculty Scholars Award by the Josiah Macy Jr Foundation. This award is given to select educators nationally to accelerate needed reforms in health professions education to accommodate the dramatic changes occurring in medical practice and health care delivery. Dr. Hasnain received her medical degree from Dow Medical College, Karachi, Pakistan and Masters in Health Professions Education and Doctorate in Public Health Sciences from the University of Illinois at Chicago.

 

Dr. Laura Meyer-Junco is a Clinical Assistant Professor and Clinical Pharmacist at the University of Illinois at Chicago (UIC) College of Pharmacy, Rockford campus. Dr. Meyer-Junco received her Doctor of Pharmacy degree from Purdue University College of Pharmacy, graduated from Augustana College with a Bachelor of Arts degree, and completed a first year Pharmacy Practice residency at the University of Rochester Medical Center in Rochester, New York as well as a second year Geriatric Specialty residency at the Durham VA Medical Center in Durham, North Carolina. Dr. Meyer-Junco is a board certified pharmacotherapy specialist, a certified pain educator, and practices primarily in hospital-based geriatrics and palliative care as well as home-based hospice care.   

 

Dr. Michael J. Koronkowski received his B.S. in Pharmacy in 1986 from Drake University College of Pharmacy and Health Sciences. His Pharm.D. degree was conferred in 1990 from Purdue University College of Pharmacy and Pharmacal Sciences. He completed a Pharmacy Practice Residency program at the Philadelphia College of Pharmacy in 1992 and a Fellowship in Geriatrics at the University of North Carolina at Chapel Hill in conjunction with Duke University and Glaxo Research Institute in 1994.

Dr. Koronkowski joined the faculty at the University of Illinois at Chicago in 1994 as a Clinical Assistant Professor in the Department of Pharmacy Practice. Currently, he practices in Internal Medicine/Geriatrics as a Clinical Pharmacy Practitioner at the University of Illinois Hospital and Health System.  His research interest include: geriatric pharmacotherapy management, adverse drug reactions, medication safety, post-acute care transitions, and evidence-based interdisciplinary practice models. Current research program funding is ongoing through the Illinois Department on Aging (IDoA), Chicago Department of Family Support Services, Senior Services, White Crane Wellness Center, Age Options-Area Agency on Aging targeting community-based senior wellness and the Department of Health and Human Services, Health Related Services Administration (DHHS-HRSA) Geriatric Workforce Enhancement Programs entitled ENGAGE-IL and CATCH-ON targeting Older Adults with Multiple Chronic Conditions in Primary Care.

 

Editors:

Valerie Gruss PhD, APN, CNP-BC
Associate Professor
College of Nursing
Director, ENGAGE-IL
University of Illinois at Chicago

Memoona Hasnain MD, MHPE, PhD
Professor and Associate Department Head, Faculty Development & Research
College of Medicine,
Department of Family Medicine
Co-Director, ENGAGE-IL
University of Illinois at Chicago

Expert Interviewees:
Terrianne Reynolds, MPH, SMP

Director, Medical and Research Activities
Alzheimer’s Association Illinois Chapter

Expert Bio:
Ms. Terrianne Reynolds currently serves as Director of Medical and Research Activities for the Alzheimer’s Association®, Illinois Chapter. She currently leads the Medical and Scientific Advisory Committee-Illinois, specifically dedicated to the areas of physician outreach, education and research engagement throughout 87 counties in Illinois.

Through a grant provided by the CVS Health Foundation, Ms. Reynolds is leading initiatives to enhance outreach education to physicians and healthcare professionals caring for individuals with Alzheimer’s and related disorders. The grant will also enhance the Association’s efforts as a leading partner with the top health care systems throughout Illinois, encouraging early diagnosis and assessment in order to plan and care for individuals and families affected by the disease. Prior to working for the Association, Ms. Reynolds served as Director of Operations/Assistant Dean for Planning for the Chicago Medical School at Rosalind Franklin University of Medicine and Science for 10 years, and served as Clinical Instructor of Medicine, specifically serving as Course Director for 2 years for the M1 Clinical Epidemiology course.
Ms. Reynolds currently resides in Northbrook with her husband and two boys, Payton and Jack.